I Think My Son May Be a Superhero

It’s 9 p.m. on Saturday, and Super Zeke the Amazing is feeding himself a bottle of Pedialyte as I kick back and start typing this post. I am stupefied by the rate at which my son is recovering, both physically and mentally.

Things really started to rebound around 1 a.m. when the following trifecta began to take hold:

  1. Codine, instead of morphine (which also caused his nose to itch), was given for pain relief;
  2. The rediscovery his right thumb enabled him greater pacification;
  3. And snuggling with a Gabriel-scented blankie and Pooh bear from home offered him ultimate relaxation.

It was as if the stars aligned when my previously distressed boy pulled that woobie over his head, hugged Pooh tight, and passed out in a deep and contented slumber with his favorite thumb planted safely in his mouth. It was a beautiful sight to finally see Zeke so rested and for such a long period of time. Ever since then, he has been like a baby superhero, healing at the speed of light, battling the downsides of a lengthy hospital stay and getting healthy with avengeance!

Here’s how things have played out since our pint-sized Man of Steel kicked into gear:

June 13

  • 6:30 a.m. — Zeke smiled for the first since the surgery.
  • 7:30 p.m. — He had his first poop.
  • 8 a.m. — He had an aerobic get-it-out cry after his morning codine and impressed everyone with his sonorous screams, so it seems like Zeke’s four remaining lobes are doing just fine without the help of the fifth.
  • 8:45 a.m. — Since his right hand was getting puffy at the site, Nurse Amanda took out Zeke’s IV, as well as his catheter. Man, did that IV dressing leave behind a nasty stink-foot stench. Who knew a sweet and delicate baby hand could smell so dang nasty?!
  • 9:15 a.m. — Amanda weighed Zeke before his first sponge bath and stinky boy came in at 20 pounds, 11 ounces. She said the chest tubing weighs about a pound, but still, Zeke didn’t even weigh 18 pounds the day of his CT scan on June 2. You do the math; that’s some astonishing growth for sure!
  • 11:15 a.m. — Amanda and I were hoping Zeke could forego an IV, since his codine is administered orally and antiobiotics (which he was to start taking at noon) also come in liquid form. “I begged him,” Amanda said of her pleas with the doc, but he still insisted on another IV.
  • 11:30 a.m. — After taking Zeke’s temp, which was 98.5 (down from 100.1 earlier in the morning), Amanda reluctanly put an IV in his foot. I tried to distract him with pictures from with Houston’s “Oh my, oh my, oh dinosaurs!” book, singing him silly Mommy songs and letting him use a bottle of Pedialyte as a pacifier. He really is the Brave Baby of Steel ’cause he shed not one tear when that big, sharp needle pierced his itty-bitty vein.
  • 12:15 p.m. — A second IV was successfully inserted in his foot. Unfortunately, the first one didn’t flush, so two delightful Air Care nurses (who had just brought a sick kid in on a chopper), did the dirty work, while Amanda tended to the new patient. Our Z-Bird only cried for a split second and then began flirting, consequently adding two more chicks onto his growing list of hot-nurse girlfriends.
  • 1 p.m. — The doc visited and confirmed our suspicions that Zeke would be moving to a regular pediatric room today. He also explained that Zeke’s leaking chest tube was of no concern. As long as blood and other bodily fluids continue to drain out of the site, preventing infection, he doesn’t really care the path in which they exit the body. He then hinted that he wouldn’t be surprised if the chest tube was removed on Sunday.
  • 3 p.m. — Amanda and Jim, a nice nursing assistant, wheeled Zeke around the corner from intermediate care to his new private room. Amanda had grown pretty fond of my charming boy and opted to bend the rules by letting Zeke keep his bed from the PICU, instead of subjecting him to the small, rigid, prison-like cribs found in the floor rooms.
  • 4:30 p.m. — Daddy and Granny brought Houston and Gabriel to visit brother for the first time. Houston was surprisingly unimpressed with the hospital and Zeke’s circumstances, whereas Gabriel beamed when he layed eyes upon his best buddy. Reports are that he has been extremely bummed without his other half, waking up throughout the night just wanting to be held — not a typical thing for Gabe.
  • Midnight — Zeke’s IV was starting to come loose, so Nurse Yvonne got a IV-expert nurse in to fix the current one, which she did, saving Zeke the pain of having a third IV inserted.

Other notables:

  • Zeke’s hemoglobin levels had been 7.6, but have shot up to 9.8 (normal level is 10.5).
  • The sodium and CO2 levels in his blood are a smidge low, but Nurse JoAnne said that at the rate Zeke’s rebounding, it would definitely not be necessary to give Zeke a blood transfusiion.
  • I eventually discovered the hospital provides real-food trays for all nursing moms, so I have been getting them delivered to Zeke’s room. Better late than never.
  • I left for home yesterday before my first tray was delivered, so “thanks” to Pastor Joe for bringing me my first post-broth-and-jello meal of the day.
  • Thanks to Auntie Merdy for bringing me my first coffee of the day … and just the way I like it: with tons of cream, sugar and caffeine.
  • Thanks to Granny for keeping Zeke company and letting me head home to decompress with the boys for a bit.
  • Thanks to Daddy for being the best father and husband in the whole, wide world.
  • And thanks to God for sparing our little angel.

Happenings @ Brenner’s

This is what’s happening here @ noon time:

  • Zeke is sleeping … kind of. All the cords and IVs have been removed from Zeke’s left hand, so he keeps wiggling about his crib, rubbing his eyes and nose with his now-free hand. His eyes are closed, but I’m not sure how much actual rest he is getting.
  • Zeke’s left hand isn’t his thumb-sucking hand. But if he gets desperate enough for pacification, he’s certainly smart and resourceful enough to suck his left digit for the time being.
  • Dr. Petty visited around 11 a.m. and reported that, medically speaking, Zeke is doing great.
  • He said Zeke’s puffiness will probably get worse today, which seems to be the case, but should start improving by tomorrow.
  • He is pleased with all of Zeke’s various tests, although he is still keeping options open for a possible blood transfusion. Zeke did lose a little blood during the surgery and his white blood cell count is a tad off. Dr. Petty’s fairly certain this will improve on its own, but he wanted to prepare me should a transfusion be necessary.
  • I was able to breastfeed Zeke on my right breast around 10:45 a.m. After pumping the remaining of the right breast and comparing that to all that I got out of the left, I’d say he consumed about 4 oz. of milk — pretty darn good for a kid who just had major surgery. What a champ!
  • Zeke’s temp, which had gotten up to about 101, is coming down steadily and registed at 99.9 degree during the last reading.
  • In addition to his occasional screaming outbursts, Zeke is doing lots of grunting/whining under his breath. Personally, I think this is just his way of communicating as best as can be expected of a baby who was cut open 24 hours ago, and is currently sedated with anesthesia and morphine. I doubt I’d be cooing, making bird sounds and saying da-da if I was in his position.
  • Zeke was awakened by a nurse a while ago, and became really wide-eyed and curious, checking out all the gadgets, beeps and blinking lights around his crib. He’s back to sleep now, but I certainly think that was a good sign of normalcy.
  • I don’t know why the heck food services has been bringing “food,” since all Zeke has been okayed to eat is Pedialyte and breastmilk. But I sure am thankful, since two meals of juice, broth and jello are all the food I’ve had today. It’s amazing how good simple calories can taste when you’re as hungy as I am.

I just don’t want to leave Zeke long enough to go get some grub and coffee in the cafeteria. Granny is heading this way in a bit to relieve me of my duties here for a while. After inhaling the food and caffeine she is bringing me, I’m going home for a while to shower, spend some time with Stephen and the boys, and pick up a few more things for my future overnight stays at the hospital. Thank God for Granny, who is handling childcare at Clan Dillingham through early Monday, and Gramsey and Papa, who are taking over Houston and Gabriel duties early next week.

Milestone update: Up until yesterday, Houston had been calling both “brud-urs” Zeke. Well, Granny reports that Houston called Gabriel by his actual name yesterday. I guess it took Zeke being carted off for Houston to realize that, even though brothers look alike, that they are actually two separate people.

Mommy update: Nurse Krista has ordered me a breastfeeding tray, which should include some real food options!

A Day @ the Park

We miss Auntie Merdy a bunch, so we had a play date with her on 5/28 (click the photo below to see all the pics from our outing). We went to a shady and secluded park nestled in her beautiful neighborhood. There were lots of other stay-at-home moms there and plenty of kids who were Houston’s age, not to mention, three other sets of twins! It was a perfect spot for all my zany boys to spread out and play to their hearts’ content. And it was especially nice to spend some quality time with our beloved Merdy.

Auntie Merdy keeps Houston in check as he pushes an unwitting little boy on a fast ride.

Other things in the news:

  • Last month, Gabriel and Zeke uttered their first “words,” which were “da da da” — a milestone that tickles Daddy pink.
  • Zeke also enjoys making bird-like sounds, which is the reason his nickname has morphed from Z-Man to Z-Bird. Happy growling is another way enjoys expressing himself.
  • When Gabriel screams, which is luckily only when he’s tired or hungry, the sound nearly shatters glass. We are fairly certain he’s going to grow up to be a heavy metal singer.
  • Gabriel has dimples way high up on his cheeks when he smiles a big grin — too cute!
  • Auntie Lisa came to visit in May and brought the kids tons of hand-me-downs, which included a Zeki Bird — a toy that came after Zeke’s new nickname. Lisa also passed on other great toys, nice clothes and many books, some of which date back to when Lisa, Dina and I were little tikes in the ’70s.
  • Houston pedaled on his “sickle” (tricycle) a few weeks back — not yet a constant, but I bet he’ll be trucking quite nicely by the end of the summer.
  • Gabriel and Zeke are now doing what I would officially call crawling. Gabriel began first, so his style is a tad more advanced. Zeke can certainly hold his own, but he prefers moving backward, instead of forward.
  • The twins are growing like weeds. I did a home-scale weigh on 5/24; Gabriel weighed 17 pounds and Zeke was close behind at 16.5 pounds. Then Zeke got weighed at the doc on 6/2 and had already plumped up to 17 pounds, 10 ounces.

Gabriel & Zeke also enjoy the park, & have fun investigating Mommy’s cheap sunglasses.

Hyper Houston is all boy. He’s like a Coke bottle — initially calm, excited when shaken up and eventually explosive when the top pops off. So, I asked Houston whether he wanted his nickname to be Bull, as in bull in a china shop, or Taz, as in the Tazmanian Devil. He chose Bull. Mommy and Daddy are working diligently to help Bull keep his cool a bit more. “Horses” (which means, “hold your horses, wait, be patient”), “calm” and “gentle” are oft-repeated refrains these days.

Our energetic toddler has been taking swimming lessons with Daddy at the YMCA. Houston indubitably possesses a rebel streak, wanting to make his own rules and swim against the tide, so to speak. He didn’t want to participate in any of the group activities during his first lesson. He’s not afraid of water or getting his face wet because he loves taking baths, playing in the hose and swimming in his kiddy pool. (Hence, the reason his upcoming birthday party is going to be centered around water activities.)

We’ve concluded that during his first visit, he may have just been overwhelmed by all the goings on at the Y. Daddy says Houston did much better at the second lesson, although he still wanted to take things at his own pace and branch out with some individual play. Houston simply has a unique learning style, as do so many boys, so it’s a darn good thing we plan on home-schooling our kids, or else he’d most definitely be pushed Ritalin by our public school teachers.

Houston was quick to make friends in the sandbox.

Houston’s seasonal allergies are still raging, despite his being on Claritin and prescription eye drops. I’ve tried a few natural remedies, like the juice of half a lime squeezed in his regular juice daily. Not sure if it’s helping all that much, but I figure it couldn’t hurt.

Also, his previously moderate skin allergies — they had been occasional bouts that never seemed to bother him all that much — have developed into a full-on dermatologic issue. Poor ol’ Houston has eczema on the insides of his elbows and behind his knees, and battles patchy dry skin on his face. Yesterday he complained that the “hummah” (hummus) he was eating was hurting his face. So sad. Right now I slather him with Eucerin lotion and lanolin, but I certainly plan on getting him in to see a derm doc once we have Zeke taken care of.

Zeke attacks the Zeki Bird with gusto!

Speaking of our darling Z-Bird, he goes in for surgery this Thursday morning. I’m lucky that I lead such a busy life ’cause I’ve rarely had time to dwell on how freaked out I am about having my almost 8-month-old son cut open and then having one of his lung lobes removed. But we didn’t name our youngest Ezekiel for no reason. That boy earned his name, which in Hebrew means “strengthened by God,” during his treacherous time as the “stuck” baby in Mommy’s bum placenta. He is not only a survivor, having defied the odds with TTTS, but Zeke is also a thriver, making it through his preemie birth, his NICU challenges and all the subsequent trials those entail for newborns.

I have total faith that God is not yet ready for Zeke in heaven; I believe that God would rather keep our sweet Zeke here to be the constant ray of light he is to anyone who is fortunate to meet him, as well as those of us who are blessed to be loved by a true angel.

Be sure to check out all the May – part 2 pics, which include birthday-suit shots of the twins and Houston wrestling with Daddy.