Yesterday & Tomorrow

Yesterday started off with Rebecca getting an ultrasound with the specialist. Things on that front were good but were only a band-aid to the syndrome. Zeke was not stuck again and the docs were finally able to view his bladder (a big deal when dealing with TTTS), but ultimately, something will probably need to be done soon. Therefore, we’ve started the ball rolling with all of our local team and the Fetal Care Center in Cincinnati, Ohio.

But we also had a lot of positive news yesterday, too: the chromosomal fish study came back negative, the echo-cardiogram didn’t show any abnormalities, and Rebecca got discharged from the hospital. She’s doing fine and has stopped having contractions. She’s glad to be back home where she can see Houston, relax uninterrupted, and exist peacefully, unencumbered by the degrees of medical hoo-ha she was plugged up to.

Tomorrow we have another ultrasound with the specialists in the morning. We are hoping and praying for a miracle and planning for otherwise. If the condition has indeed worsened enough to the point where action needs to be taken, we will be going to Cincinnati. My dad might be coming along as our backup. We would start the process early Monday morning, meeting with the remote team and figuring out the game plan for the week. The process is called fetoscopic laser surgery. It’s goal is to correct the blood-flow coming from the placenta, so that both babies have an equal share.

Many have been asking, “who is taking care of Houston?” Well, let’s give a hearty shout-out to grandmothers, or abuelitas, as some may call them. They rock. Especially when the come to take care of your children and cook you food. Houston has been in very good and loving hands and has been up to the following:

  • He’s doing the more sign (we think)
  • The daddy (or hat) sign
  • The dog sign
  • The abuelitas report that he’s saying “Dixie” and “uh-oh”
  • He’s giving hugs to his friends
  • Dancing to music
  • Walking confidently
  • Even running, says Gramsy

Rebecca is currently still on bed-rest at home, drinking high-protein shakes throughout the day, laying on her sides, pretty much only getting up to “take care of business.” She’s still is in high spirits and has a positive attitude about the whole thing. We ask that you continue to pray for us and we thank everyone for all their help. Most especially, we thank God, who has given us the strength to get through this thus far. Keep watching the blog for periodic updates.

The Twins Have Names!

So this is your friendly neighborhood Beeler posting instead of Reba, because the aforementioned lady is currently in the intensive care unit at the hospital. Don’t worry, she’s only in ICU because there were no regular rooms left for her in genpop. I’ll get to all those details in a minute. First, our twins have names! Baby A, AKA Lefty, has been given the name Charles Gabriel Dillingham, and baby B, AKA Pancho, is Stephen Ezekiel Dillingham. Colloquially, they’ll be known as Zeke and Gabriel. When they’re bad, which they’re sure to be, based on their genetic history, the full names will surely apply. Those of you up on your bible reading will recognize the two middle names. In Hebrew, Ezekiel means “strength of God” or “God will strengthen” and Gabriel means “God is my strength.” We ultimately decided on these names because our twins will need to be fighters, blessed with God’s divine grace, to make it through the ordeal they are currently faced with. Charles and Stephen are names with familial roots. Charles was the name of my paw Beeler’s daddy and also the name of Rebecca’s grandfather on her dad’s side. My name, Stephen, is inherited from my great-grandfather Dillingham.

Family portrait from May 2008.

So what went down today? Well, we were scheduled for another ultrasound at 9 a.m., with the possibility of an amnioreduction, based on what Dr. Joy found. The doc found that the condition had worsened and indeed an amnioreduction was required. We didn’t realize that with the amnioreduction, 24-48 hours of hospitalization was also in the cards. Rebecca handled the procedure pretty well, after some initial faintness. Basically, the doctor inserted a long needle into her abdomen and through her uterine wall and manually extracted about a pitcher’s worth of amniotic fluid, which vaguely resembled a light domestic lager, with foam and all. How ironic is it that amniotic fluid is mostly urine? The fluid was taken out of little Gabriel’s amniotic sac. Dr. Joy said Gabriel was upset because he was being demoted from a four bedroom apartment to a single room studio. For the most part, Gabriel stayed away from the needle (we were watching the whole thing play out on the ultrasound), but I think one time he actually came over and touched the needle. On the other hand, Zeke was relieved and we were able to get a 4-d ultrasound picture of his face, which we were unable to get before the reduction because he was stuck. Rebecca was then admitted to her room in ICU and about an hour later, she started having contractions. The contractions came on as she has having a phone conversion with her mom and she didn’t physically feel them. The monitoring devices picked up the contractions and the doctors started giving her magnesium sulfate which reverses pre-term labor. The on-call doctor from her practice, Dr. Rivard, assured us that the medicine appeared to be working. Dr. Rivard is a French-Canadian lady who looks a lot like Celine Dion. More irony? Or is it just genetic and environmental influence? Anyway, the message we’re getting from our doctors is that we will be going to Cincinnati, OH before the week is over for some laser surgery. While this type of laser surgery isn’t foolproof, it is the best type of treatment available for twin-twin. And the fact that we have this ball rolling this early is good news. We ask that everyone pray for our twins, little Zeke and Gabriel.

Houston

As you can see, Clan Dillingham headed into the studio for some more “fancy” photos. Be sure to check out all the professional pics from May 2008, which include more family photos and plenty of Houston-hamming-it-up shots!

Update On the Twins

Let me start off by saying that we have many great beach and first-birthday photos to share, but I haven’t gotten a chance to download and edit them all yet. In the meantime, please enjoy a few shots of Houston and me cooling off at the local aquatic center on recent a hot June day.

Mommy and Houston cooling off at the pool in June 2008. 

On a serious note, we had our 20-week ultrasound for the twins on Tuesday. First the good news: it’s boys! However, my OB also notified us that he found some “abnormalities” that could mean something grave or nothing at all. One abnormality he was sure wasn’t “normal” was that the amniotic sacs didn’t contain an equal and appropriate amount of fluid. Baby A, who is located on my left, contains much more fluid than does the sac of Baby B, who is on my right. Thus, A has plenty of room to move about freely, while B is limited in his space. (At this point, this situation hasn’t affected either baby’s physical development; it’s just making A happy as a clam and B bummed out that his brother keeps trying to get him to play, but he can’t.) So, the OB referred us to a maternal fetal care center, where I underwent an ultrasound this morning. The following is an email Stephen sent out to his coworkers explaining the findings of the ultrasound specialist:

“Our twins have been diagnosed with what’s called twin to twin transfusion syndrome. In a nutshell, it’s a defect in the placenta that they share that causes one twin to receive too much blood and the other twin to not receive enough. The bad news first: there’s a chance we could lose one or both twins and if they survive, they will almost definitely be premature. The good news is that on a scale of 1 to 5 with 5 being the highest severity, they are currently between 1 and 2. At 3 or 4 they could require microscopic laser surgery on the placenta at a specialist center, of which there are only a few in the country. Rebecca has been ‘sentenced’ to bed rest and she will be supplementing her diet with a heavy dose of protein. She’ll probably be getting up to two ultrasounds a week for the remainder of the pregnancy and she’ll probably get a couple of amnio-reductions, which carry a slight level of risk to the pregnancy also. For those of you who know Rebecca well, you know what kind of challenge it will be to keep her in the bed 24/7, especially considering we’ve got a one year old running around the house. All that being said, she is in high spirits and has a positive attitude about the whole thing. Thanks in advance for all your prayers and well-wishes.”

I will be getting another ultrasound, an electro-cardiogram on the twins’ hearts and an amnio-reduction this coming Monday. The hope of the amnio-reduction is that the taking some of extra fluid by amniocentesis from B’s sac will help equalize both sacs — kind of like a balloon that’s separated only by a thin membrane and is being squeezed on one end (A’s end); hence, lowering the volume of A’s fluid will theoretically force open the hand on B’s end of the balloon. This could work totally (best case scenario, of course) or slow down the progress of the transfusion (another good option, but not the best) or do nothing at all. So, please keep all of us in your thoughts and prayers, and I will keep y’all posted on our beautiful baby boys.